Thursday, April 30, 2015

MS Update - Adjustments and catching my breath

Here are a couple of interesting MS related posts
http://www.nationalmssociety.org/About-the-Society/News/National-MS-Society-Invests-$28-Million-in-New-Res

http://multiplesclerosis.net/living-with-ms/multiple-sclerosis-the-ugly-truth/

It has been a bit since my last post.  Life is going a million miles a minutes and I am doing my best to keep up.

I learned a few things about my MS this winter.  First, DRs take more stock in whether or not the meds are staving off major relapses then they do about daily quality of life.  I guess keeping my body from permanently damaging itself is more important. :(. Hoping to talk to my Dr about other options in the future.

Second, cold sucks for me too now. When I get cold it is like my body flips a switch and cuts off circulation to my fingers and toes, and feels constricting.  This happens when I am cold even if it isn't cold around me.  I'm learning to wear layers and think harder about wearing sandals with no socks (which I love to do April through Oct).

Finally, it was a pretty intense first four months of 2015.  I traveled a lot for work around the state logging thousands of miles and many hours in the car doing training and outreach.  While it was important it also beat me up a bit.  April brought two in state conferences, one that I was primary contact for at a national level so there were a lot of moving parts but I had a great team.

I am still working on my stress management skills as I am certain that has an impact on my body but I am also trying to cut myself some slack.  I am still really watching what I eat and getting regular exercise so that helps.

I'll write more about my exercise goals soon.  My last comment is that I joined a Bike MS team again this year.  The team is led by Charlie whose wife also has MS.  I am not sure if I will do the ride (still working out all my summer obligations) but helping raise research funds for a cure.  To donate to me and my team
Go to this link: http://main.nationalmssociety.org/site/TR?px=13447566&pg=personal&fr_id=25324
(You can also mail a check so let me know if this is your preference.)

Until next time thanks for reading.



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