Tuesday, August 4, 2015

MS Update - The good and the even better

these are pretty darn nice seats
A couple of great things to share today. The last couple of weeks have delivered some happy surprises.  The first one was winning two great seats at the ICubs game and being able to go with my family and my wonderful Aunt Joyce.  The coolest thing was I got to throw out one of the opening pitches.  As a result I got to play catch with my kids and Joe to make sure I could still throw a ball 66 feet.  Needless to say I got the ball from the mound to the box just right of the plate so not too bad for someone who’s pretty rusty these days.

throwing out the pitch

The other pretty great news came yesterday.  It was my annual meeting with my neurologist.  Despite feeling like my appointment was rushed, along with the “ride in the can” (35 minutes in an MRI machine) the outcome was worth the effort.  My neurologist was beaming when he came in.  It looks like there is no active disease progression showing in my MRI ( had a lot Feb 2014). AND my Doc said I have an almost a 50% reduction in the lesions on my brain too, so something I am doing is healing some of the damage (not that my symptoms are resolving) that was done from my MS and the med (according to the doc) are keeping me from relapses.  Only bad news is he won’t let me go down to the half dosage so I am stuck with yucky injections three times a week at the current dosage which makes me feel crummy for a week usually once a month. Even so my mom, my boss and my hubby all said it was worth celebrating so we got a couple of tasty sandwiches and a refreshing beverages. Yum!

At the MRI appointment the tech asked if I wanted to take the elevator or the stairs and I told her as long as I am able to take the stairs then the stairs it is.  Then, I was at the pool yesterday in between appointments (shocker I know) and a disabled man was struggling across the deck and I am thinking in my head that that could be me some day.  I stopped in my tracks and asked him if I could help as he was trying to get a lifeguards attention.  All he needed was a seat so I brought him one.  Every day am thankful for my mobility and my mental capacity.  All in all I am feeling pretty lucky.  Sending thanks into the universe.
One last cool thing is our butterfly garden has has some activity. We have monarch butterfly caterpillars working on their bush so excited to be doing our part to continue to support their population.
As always thanks for listening.

1 comment:

Unknown said...

Great news from the Dr!
Rock on!

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