So 2020 has been a raging dumpster fire across the US but I’m feeling fine. Here is where I last left you in February. https://blaesing-thompson.blogspot.com/2020/02/ms-update-and-bunch-of-other-health-st.html I was still navigating food sensitivities, mineral imbalances and starting a new MS med. Add hiding out from COVID (my dining room table is my office now) middle school tutor (my youngest schools across the table from me every other week) the s$%&show that is the government, plus racist dialog/unrest and the last seven months have been a lot to take in.
Today I am hanging out in the infusion center down at Mercy Des Moines spending 8 hours pumping chemicals into my body to keep it from revolting on me. I go every six months with this new med. I had an MRI four weeks ago, and it showed the lesions that formed last fall are healing (YAY!) and that a lesion that formed before I started Ocrevus (late March) is no longer active and no new lesions. So with MS the doctors can see lesions (little gaps in the protective cover - myelin ) on my nervous system and then they put in a contrast agent and if they have a halo they are considered active.
So nothing active is a good sign that my MS is not progressing with my new meds. My MS symptoms like the dysthesia of last fall are far apart and a lot more mild. Likely due to permanent damage to the myelin from when my last med wasn’t working. I still have parathesia with the weird tingling in my feet and hands along with mild fatigue but the herbs and MS meds seems to be leveling me out. These meds seem to have far milder side effects. I get a roaring headache the 24 hours after the infusion, and may have thinning hair which I am countering by adding Biotin.
I still push myself harder then I should most of the time because there is so much life I want to live while I can live it the way I want to. Our time here is short and I am so grateful that I only have to come for an infusion every six months especially if this med go to use to work for me.
There are many people here at the center coming in twice a week, month, etc for life saving infusions. I can suffer through the beating, alarms, noisy TV neighbors and nurses coming in to measure vitals ever 30 minutes if it means I can continue to stay fit, spend time with my family and love, and continue the upkeep on this big old house (more on house renos later. So with that. I will leave you with a post from one of my favorite MS bloggers that captures some of my feels on MS and life right now.
https://www.everydayhealth.com/columns/trevis-gleason-life-with-multiple-sclerosis/when-living-in-a-pandemic-or-with-ms-enough-is-plenty/ “Enough is plenty”
Know you are loved. Wishing you all a great week.
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