MS Update - 2024

It's been a while since I have checked in here.  I keep queueing up ideas on things I want to share but haven't taken the time to collect my thoughts. It’s been over ten years since my official Multiple Sclerosis diagnosis.  I've had a lot of ups and downs the last six years but it seems most of them are accident related (racoons, foot fracture, IT band issues, shoulder angst, migraines, ankle fracture, etc) and while my MS effects me every day it is minor in the grand scheme of things.

I came across the word disABILITY on one of the MS blogs I read and thought it was a good summary of my MS and me.  I am fighting to retain my ABILITY with my disability.  I learn new things about my illness each year.  This year I had a lot more good days then bad, but found I don't have the stamina I'd like especially when going to multi day events or activities.  If I don't build rest into my schedule then it makes it hard by day three to keep going.

The link below was very relatable for me.  I am working hard to stay present.  Focusing on my goals and not letting the worry of the future with MS ruin my now.

https://multiplesclerosisnewstoday.com/columns/2024/05/21/feel-like-ive-lost-time-living-multiple-sclerosis/

This year as I said has been mostly good. My neurologists say I am stable, my MRIs are holding same with no active disease progressions showing on the scans.  I am on a great med with very few side effects and only slows me down two days a year.  I am still doing physical therapy to continue to work through my deficiencies and am doubling down on doing my homework for that each week.

I am doing better at managing my energy, as the funny thing about taking on a part-time teaching gig while working full time, is I spend at least one day every weekend on the couch working on class stuff so it rather forces me to be in a resting state instead of a working on the house or running around doing chores.  The house stuff gets done eventually, and I have a wonderful partner that is a great cook so I contribute when I need or want to in the kitchen.

I've been diligent about putting my fitness activities on the calendar and following through.  I need to get back to monitoring my nutrition as the holidays have lead to a few more pounds to my bits and pieces.  I have big goals though so diet and exercise will be driving me in 2025 which in turn supports my MS journey.  So I have set my intentions to focus on the now, live life to the best of my ability, and adjust plans as I need to to live my best life.  As they say in my world, I have MS but it doesn't have me.